Maya McMillian knew the risk. Early on in her pregnancy, Maya found out she would be having twins. As she prepared to bring two new lives into the world she learned that the children's father had sickle cell disease. Maya was also tested and discovered that she too had the gene and could pass along sickle cell anemia to her children.
Newborn screening told Maya that one of her two babies, Darnay, had sickle cell. "It wasn't a shock" Maya said. "We knew there was a chance, and we've just lived right through from the beginning." The twins, Darnay and Darren, are now in their eighth year. From simple antibiotics, to transfusions and, most recently, a catheter inserted in her chest, the family deals with Darnay's disease as it comes.
Though Darnay does not need a bone marrow transplant right now, her history suggests that one could save her life someday. Maya adds, "It's hard sometimes because she doesn't know why. She knows she is sick, but certain things will happen—not being able to swim all the time, being constantly covered up, and all the doctor's appointments, she'll say ‘Mom, do I have to?'"
It's a stressful lifestyle, but the McMillan family is thankful that Darnay has received all of the transfusions she has needed so far. Maya and Darren pray that others will continue to donate and bless their family with such an incredible gift.